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Fibrosis of the Liver

Stages of Fibrosis to Cirrhosis

I have been sitting on this news for nearly six months as I wait for more information.


But, I just wrote a blog post of Pagans with Disabilities and Chronic Illnesses about radical acceptance. It is time to radically accept my situation.


I have some stage of Fibrosis and am NOT in Cirrhosis at this time, to the best of my knowledge. If you follow me on Urban Unwitches, my Podcast, this information will be in future episodes with a detailed explanation about why I still am not sure what level of fibrosis I am in.


The story is common. Female looks healthy seeks information about consistently bad liver results and is told nothing is wrong only to have the doctors back peddle when they discover something is wrong.


Currently I am waiting on another test that is a specialized MRI that won't happen until March. This should definitively categorize my issue.


What this means in real time is I am tired. I have been really tired for about 8 months and I suspect this ongoing issue is to blame. Fatigue is nothing new for me as it is one of the primary symptoms of Mast Cell Activation Disorder. It had improved with a treatment for my chronic hives and now I find myself exhausted at the end of the day.


It also is requiring a new diet and loss of weight to ease the strain on my liver. I am taking a new drug and may be placed on another to move me toward the weight loss goals if I cannot manage it with diet and exercise. So far, exercise is a distant goal as I continue to battle fatigue and a bit of a rebellious nature toward being forced to change.


It is hard to explain to someone who isn't chronically ill how finding out a new serious diagnosis is both expected and demoralizing. Chronic Illness causes the sufferer to pace their life and ask a long list of questions that abled bodied people don't worry about. You are constantly wondering:


Do I have enough tokens (spoons) for this?

Have I had enough water?

Do I need to take a break?

Will today adversely impact tomorrow?

What doctor do I need to schedule?

Do I have enough money to cover my medical needs and prescriptions?

Will my insurance cover this treatment (if the person even has health insurance)?

Am I inconveniencing someone?

Am I doing enough for my husband (wife, kids, animals, friends)?

Can I line up my feel good times to spend with my husband (wife, kids, animals, friends)?

Who will (fill in the household chore) if I don't?

If I eat this am I making myself worse?

Will the restaurant be mad if I ask for an accommodation?

If I take this medicine am I adversely impacting my (fill in major body system)?

Liver or Kidneys (which pain medicine should I take that will task my Liver or my kidneys when both are not doing well).

Will they let my service animal in without a fuss?

Are people looking at me wondering why I need a service animal?

Are people looking at me and judging me for parking in the handicap zone (with proper licensing)?

Can I afford my vitamins and supplements that help me make it through the day?

Can I bend over today without passing out?

Will they cancel my SSI benefits? Medicare? Medicaid?


All these thoughts and feelings course through me while I am irritated that another part of my body is falling down on the job of simply providing a body that will do all the things I want to, need to do. In the back of your mind, you are worrying about what system is going to have problems next and how bad is that problem going to be. What other restrictions will be placed on an already restricted life?


This isn't a pity party it is an attempt to expose able bodied people to the dilemmas living with chronic illness creates. I also hope those with chronic illnesses and disabilities read and commiserate with me. You are not alone. All of us spoonies are struggling in the same way.


Meanwhile, as I live with chronic illness, I am tending all my passion projects: writing, Pagans with Disabilities and Chronic Illnesses, Urban Unwitches, Circle Sanctuary, RevDia.net and Willow Dragonstone Community & Coven.


These things keep me feeling like a productive member of society and the pagan community. If you are wondering if you can do anything to help me. The answer is, "Yes!"


Let me do a reading for you. You can book on my website revdia.net.


Consider volunteering for Pagans with Disabilities and Chronic Illnesses or Circle Sanctuary. Both worthy causes that could use volunteers to keep expanding, growing, and serving the pagan community.


If you are a member of Willow Dragonstone Community & Coven, volunteer some time to work in the covenstead organizing herbs, the library, preparing for sabbat celebrations, and attend classes when they are hosted.


Friend, Like, Follow, Engage, and Subscribe to the following ventures.


RevDia.net Friend me (CraftyDia) Facebook LinkTree

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